Autism tools you can use

How to find help

This continues regarding tools you can use to help yourself live a better life. The same goes for those who care for an autistic family member or care about somebody who is autistic.

Many times we struggle with problems that are too big to handle alone.
Yet we are afraid to reach out to others or ask for help from professionals or groups which may be able to provide information, training, or other support you need.

If you are afraid to ask for help by yourself, please try to get somebody to be your advocate, whether you contact an attorney, social worker, minister or priest or others in a church group, service groups, there are specialists who are waiting to serve your needs and help you find ways to make your life better.

If you have struggles communicating there are people who can teach you skills to help express yourself better.

If you have needs for housing, food, clothing, there are agencies and individuals who are willing to help.

If you struggle with problems with drugs and alcohol or other substance abuse, even over eating, there are professionals and support groups waiting with tools you need to succeed.

If you struggle with emotional overload or anger management issues, there are professionals and support groups available.

If you need help with almost any struggle, there is help available.

There are things standing in the way of getting help, though. First we have to know ourselves well enough to understand our struggles. Second we have to admit we need help with them. Third we have to reach out to others to find the help we may need to overcome these problems.

Which stage are you in? Do you know your worst struggles? What brings the most frustration or pain to your life? Do you know why? How can we sort it all out?

Therapists, Social workers, and psychologists can help us understand ourselves better. We can find information online, in books, self tests, or talking with others in support groups or online forums. Take time to think through the biggest problems you have now or have had in the past. Then know that you don’t have to work on those problems alone.

Your Doctor might be a good place to start. You can ask for referral to professional help if your problems can be helped by medical professionals.
You can call the local crisis hotline and ask what agencies they have on their lists that could help you. The more specific you can be about your struggles, the more likely they can be to match you up with somebody who can help.

Hospitals and churches usually have lists of helpful connections, as do all social agencies and usually senior citizens centers have resources available. These can be to help almost any issue from depression and suicidal thinking, mental illness, homelessness, hunger, domestic abuse, child care, respite for caregivers, health care, home help, anger management, substance abuse, sexual abuse, and many other issues.
There are resources available for learning better communication skills, finding help for specific chores such as cleaning, laundry, mowing or snow shoveling, helping with transportation to medical appointments or grocery shopping.
The list of helps available is long, and there are usually more resources available in larger urban areas than in small communities. If you are afraid to reach out, you can check a lot of things online, or perhaps you will have a friend, family member or other willing soul to help you search out answers to your struggles.

There is no reason to struggle alone when there are so many ways to find the help you need. If you struggle with overwhelming issues, feel lost and alone, even if you can’t be specific but only know you need help, there is help available.
Please reach out, you do not have to do this alone.

Autism and ageing

Special hazards in ageing are magnified in autism.

I took some time this past summer to help a friend who had fallen and had to have surgery for multiple fractures that resulted.
Yesterday I heard from another friend that her husband had fallen getting out of the tub, and that she had fallen on the concrete walk outside their home.

I fell 2 years ago and did severe damage to muscles and tendons of one foot. It took months to recover full function.

I think you can guess where I’m headed with this one. All of us are over 60 years old, all of us were injured due to falls.

National council on ageing provides some information to put the importance of avoiding falls into perspective.

One in 4 people over 65 will have a fall this year.

Falls are the leading cause of fatal injury in those over age 65.

Falls are the most common reason for being hospitalized in the over 65 age group.

Do I have your attention now?

Autistic people may be at even more risk than the general population because of our struggles with seizures, poor proprioception, general poorer physical care and body condition, difficulties with executive function, and other autism associated struggles.

As any person ages, they become weaker, have problems with vision, slower reaction times, and other failure of our bodies to work as they used to. Health problems such as hypertension, stroke, heart disease, etc all make us more vulnerable to every day accidents.

What can we do to help ourselves live safely and thrive as we get older?

To prevent falls, we can talk to our doctors about our physical condition and medications that might interfere with coordination and balance or perception. We can ask for help in assessing our homes for safety hazards, as many senior programs are available today to help with risk assessment, therapy for balance and coordination, etc. Make sure your eyes get checked and that you have the right prescription lenses. If you have glasses use them, don’t try to get around the house without them!

We can ‘do it ourselves’ or ask family, friends or others to help us assess the risks associated with conditions at home.

Remove clutter from floors and especially hallways and stairs.

Provide safe footing on floors and in bathtubs and showers.
Remove throw rugs and look for trip hazards such as raised thresholds, step-up or down floors of multiple levels. Look for inclined or rough transition areas from one type of floor to another.

Use painted or bright colored tape to mark these places so that attention is called to these trouble spots if they can not be modified. Use traction strips or no slip mats for bathrooms and kitchens, and mark the edges of steps with bright color or white so they are more easily visible.


Be aware of porch and basement floors which can be so hazardous and slippery when wet. there are special textured paints which can be applied to most surfaces to provide better traction and add non-slip qualities to floors.

Wear clothing that is close to your body and does not drag (long cuffs, billowing legs or skirts of pajamas or hemlines of robes, trailing belts of robes, etc can all catch your feet, legs, or hands, and can be caught on projecting knobs, stair rail ends, or other furniture details.
Wear safe footwear.. no scuffs, socks, slippery bottomed slippers, bare feet, or thong type sandals. Shoes with non slip soles are better. Wear them from the moment you get up until you go to sleep at night, any time you are standing upright, wear those shoes !

Install hand rails and grab rails where they can help you most, bathrooms and stairways, long hallways, etc. You might need to use a walker or other assistive devices to help yourself rise from furniture or your bed. Your toilet might need a ‘booster seat’ and/ or bars on each side to make it easier to rise after use. You might even need lift/assist chairs or other electric boosters to help you rise from prone or sitting positions. Always use the hand rails going up and down stairs. Don’t carry things that require two hands up and down the stairs. Find different ways to get those things where you want them to be. Ask somebody to help or carry less at a time. Arrange things on one level as much as possible to keep from having to make trips up and down for things such as laundry, the freezer, or to care for pets etc. And be aware of pets around your feet as you walk or go up or down steps. Even if they were sleeping in the other room a moment ago, they will likely follow you closely if you move. ( you know that!)

Make sure you hide cords from lamps and other electrical devices so that they are not trip hazards. Make sure your pathways are lighted completely, no walking around in the dark! Use night lights everywhere you can. Make sure the pathway to the light switches in each room are clear. You might even use glow-in-the dark paint to make the switches easier to locate in the dark.

If you are aware that you are losing muscle tone or getting weaker, you might be able to get therapy or be prescribed particular exercises to do which will improve strength, balance, flexibility and grasp.

If you think this doesn’t apply to you right now, realize that it surely will apply as you get older. Think ahead about what you can do to ease the risks of injury or death because of falls, then please take action.