The importance of diagnosis

Knowing I am autistic has been the greatest and most useful information I have ever discovered.

I want to repeat once again an explanation of the purpose of this blog.

Recently I have been getting a lot of emails with apologies for my childhood pain and angst, for my sufferings and my struggles, and all are so sorry I went through that.

I feel I have failed if the only thing I have done us stir your sympathy/empathy for pains long past.
The point of telling these things is not to obtain sympathy or to lament “poor me”, but to illustrate how autism and my lack of understanding, and the lack of knowledge of autism in those around me all contributed to the struggles we had then.

I am trying to point out the dynamics at work in an ‘autism blind’ world.

I am trying to point out things that may work to help understanding and communication as persons interacting, whether autistic or neurotypical.


The point is, that nobody then knew what we know as I type this.

Autism was at work in our interactions and none of us knew what was wrong, or how to do things any better.


Now I know and understand that I am autistic, I can see clearly how so many things happened and why.

Now I know about autism I can figure out so much of what had confused me for most of my life.

My writing here is not about the suffering and struggles, as much more it is about learning what caused them, and how they can be averted for those who are having trouble in the world today.

Older autistic persons such as myself, who went through life without ever hearing about autism are likely still living every day with a sense of confusion, frustration, self doubt and blame, anger issues and a deep sense of being a failure.

Those were the lessons taught to us by society at large and our lives being lived without the insights and understanding, and especially the self forgiveness that comes when we understand that we are not personally to blame. Autism diagnosis changes everything!

Autism diagnosis can open doors and shed light on thinking that casts a shadow first upon oneself for being ‘bad’, ‘mean’, ‘coldhearted’, ‘selfish’, ‘thoughtless’, lazy, and so many more labels we were given because nobody knew about autism and how autism changes perceptions, understanding, behavior and above all human interactions. Nobody knew!

Knowing about my autism is the best thing that could have happened to me. It has allowed me to understand so much of my past and see the dynamics that were not obvious before.
Diagnosis has given me self understanding. I had no idea of the way my thought and sensory processes differed so greatly from others. I never understood why I failed at so much that seemed so easy for everybody else. I never understood that it was not my fault. Why was I such a miserable failure?? Nobody knew!

Diagnosis has allowed me to forgive myself for being less than perfect, although I truly tried all those years to do my best, my sense of failure in any social context was overwhelming. Nobody knew!

Diagnosis has allowed me to see in light of learning about autism, how all the others I interacted with did not know or understand either.


I have been able to forgive the past and am now free to work on my deepened understanding of myself and others.

For the first time I am able to know myself and understand how my own thought processes, and indeed all the sensory processes that make up ‘who I am ‘ define me. Self understanding has brought much deeper understanding to my interactions with others as well. Diagnosis and the subsequent self understanding has been a tremendously interesting and satisfying experience, I am so uplifted in spirits and feel encouraged. With the understanding of autism I have the tools to learn and grow in so many new ways, and the insight into my autism makes it possible to see things with much deeper understanding and allows me to explore so many new options for my life.

I hope that all older people who are autistic can find the same freedom and insight that has come with my knowing and understanding autism, in myself, in my interactions with others, and in my life of the past and especially my life as I am now learning to live it.

The purpose of this blog is not to arouse sympathy, but to make people aware of the desperate need to reach older autistic people and with proper diagnosis help make the world they live in more negotiable, more understandable, less hostile, and provide good working insights and tools to use to live life free of self blame, doubt, and so much misunderstanding.

Diagnosis is healing.

Diagnosis is the key to self understanding.

Diagnosis is a catalyst to personal growth.

Diagnosis is an answer to all of those questions of ‘why’ that torment and had, until diagnosis, been unanswerable.

There are thousands of us in the USA alone. ( undiagnosed elderly autistic people) I hope to help by raising awareness that we are here, autistic, most of us in these elder generations simply not knowing, and so much help can be accessed, so much understanding and forgiveness made possible, so much healing and inner peace finally available by diagnosis of our autism.

4 thoughts on “The importance of diagnosis

  1. Yeah, I doubt you’re going to move many people to have compassion on us older “Aspersons.” The trend in society is never toward the old, but the young, and this is only to be expected. Utility and productivity are key in American culture and a few old Aspies making noise won’t change that. But reaching older Aspies themselves through blogging is of great use, as you are doing. Books for older Aspies would be of great assistance too, and reaching out to gerontologists to heighten awareness of the plight of underdiagnosis of seniors might also be of great value. Just my probably not-so-humble opinion. I for one, am finding usefulness in your blog.

    But society at large? I doubt they will be much moved. Hope I’m underestimating them, though.

    Like

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