Autism adjustments

We can choose how to live better lives after diagnosis


Suddenly everything begins to make sense! All of the “whys” of our past, our misunderstandings of what happened, ideas about who did what and why, beliefs about our histories, our families, our experiences and our own self concept are shaken and shifted to the very core of our being.

Knowing how autism acted in almost all parts of our lives and how own behavior, thoughts, actions, and beliefs have always been affected ( since birth!) by autism is validating, upsetting, a relief, a sad disappointment, a painful and exultant discovery for many of us. One dominant emotion may keep us involved for months, hours, weeks, days… we turn it this way and that looking at our pasts, others, our selves , and work out how it “really was” or “really is”.

I can hardly describe all the changes my mind and emotions have gone through since I first suspected my autism.

One of the best parts of finding out I am autistic in my mid and late 60s from first suspicions to confirmation through official diagnosis, is that I have learned how to make adjustments to my life to make it better and easier for me.
I have been able to give myself permission to avoid doing social things that are distressing and difficult by changing my schedule to do “something else” instead. Instead of going to the wedding or big family party,
I am able to write a note or make a phone call saying I won’t be there on the day but that my heart will be with the celebrating person(s) and I will deliver or send a gift or a card instead.
If somebody wants to meet in a crowded restaurant, mall, or do an activity involving high levels of noise or crowds, I feel comfortable proposing something to do in a quiet setting or other peaceful location or activity.

Maybe I have to regretfully say, “sorry, I won’t be able to do that this time”, but most friends and family will forgive me. I will counter with another proposed activity at a later date, one that fits my abilities and sensory struggles better.

Schedules and activities, places to go and things to do can be changed for self accommodation once you know your personal struggles and recognize those things you can choose to do
( those which do not set off the anxiety, migraines, cause illness or strong discomfort.)

It is OK to say no to those things which are a struggle for you.

No matter what others think or say, self care must come first, and there are many ways of meeting “social obligations” without making yourself sick with stress over any proposed activity.

When we recognize our sensory struggles we can adjust our physical surroundings to help us find calm and quiet, help us do household chores, paperwork, self care and personal care, etc.
Just because grandma always used to do something a certain way does not mean you can not use any other method to do the same thing. Cook all day, bake and make everything from scratch? You don’t have to! You can buy from a deli, take carry outs home, buy pre prepared frozen dinners, go out to eat…. in almost every situation there are multiple options.

You might not have ever thought about changing things up, doing the same things or trying to force yourself to do the same things unsuccessfully over and over. (autistic rigid thinking in action there!).

Instead, if anything in your life causes constant distress, anxiety, emotional or physical overload, consider trying a different approach to accomplish any goal.

We can live better and easier lives by making changes, but first we have to recognize the things that are the most difficult for us,

Next we can give ourselves permission to do anything differently to make our lives easier and less filled with struggles. It is OK to try something different!



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Hidden Autism?

find clues here: YOU MIGHT BE AUTISTIC IF :

Interacting with others is usually difficult, uncomfortable, upsetting, or not satisfactory in other ways. ( diagnostic criteria 1 -social struggles)

Signs include being estranged from family, lack of friends, multiple marriages or relationships that end in distress, constant fighting or misunderstandings with others including: trouble with people in school, church, relatives, workplaces, encounters on the street or in public places, difficulty with situations such as doctors offices, emergency treatment/hospital/clinical settings, difficulty in encounters with those who work with the public (police, teachers, store clerks, restaurant servers,or workers who come to your home ( such as plumbers, lawn care, house cleaners, etc etc etc).

You may have been bullied, abused,/ and-or neglected as a child, you may still be bullied or in an abusive relationship.

You may prefer to keep away from others because your “people” experiences have not been so good. Sound familiar? Keep reading.

YOU MIGHT BE AUTISTIC IF: You struggle with communication.( diagnostic criteria 2)
You might find it difficult to express yourself either spoken words or in writing, using ASL, texting, or on the phone.

You might have troubles with speech , including stuttering or stammering, freezing up when you think about speaking or are suddenly called on to speak.

You may not recognize your own emotions until they overwhelm you and you end up “falling apart,”
“blowing up” “freezing up” or “breaking down”, or “having rages” .

You might be dyslexic, hyperlexic, or be unusually talkative or withdrawn. You might prefer to read and write to communicate.

You might have difficulty using your facial features and body language, or others have told you that you have strange body language or gestures and expressions.

You may find it difficult to understand the facial expressions and body language of others.
You might have frequent misunderstandings and have trouble following directions.

You might have been accused of being over friendly or being cold, or of behaving inappropriately.
You may not recognize “personal space” of others.

Social chit chat is frustrating, boring, annoying or causes anxiety.

Having long two- sided conversations with exchange of information or ideas, or sharing of emotions is mostly unknown or you may never have experienced this.

You tend to avoid interacting with others because of these difficulties.

YOU MIGHT BE AUTISTIC IF : you have rigid thinking and or repetitive behaviors ( diagnostic criteria 3)

You might have a regular routine around many parts of your life, and you hate to have those routines disrupted or suddenly change.

You hate surprises (good or bad)

You expect certain behavior from others and are surprised, disappointed, angry, or dismayed if they do not behave the way you expect.

You have strong beliefs about right and wrong, what is good and what is bad, and you rarely change those beliefs.

You may have intense interests in details surrounding a specific subject or subjects. It is not unusual for these interests to change over a period of time, but whatever those interests are, they will be very specific and demanding detail and will be absorbing and of almost driven/ obsessive proportions.

You have certain rituals or processes you must do in order to accomplish certain tasks. Being asked to change these suddenly makes you uncomfortable, upset, angry, or distressed and worried.
As an example, I brush my teeth after I eat anything. since I snack constantly, I brush my teeth a lot when I am home. When we travel, I am often unable to brush after meals or snacks and I find that distressing. Other examples would be the order in which you do any task, the tools you might use or need to work or to perform the task, time of day you must do things, etc. If your rituals or processes are changed or interrupted it is difficult to proceed without upset.

You may tend to isolate yourself or resist other activities or interactions if they interfere with the structure of your rituals and routines, or if you are not given time to prepare for them properly.
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If you relate to these things, and more importantly relate to 2 or more behaviors from any of these 3 sections, you may be autistic.
The sections I just described are sometimes called the diagnostic TRIAD of autism… having behaviors from all 3 sections are points used to diagnose autism.
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I add my own criteria here: ( and many diagnostic persons also take note)
YOU MIGHT BE AUTISTIC IF :
You have sensory struggles. This can include not only trouble with any or all of the “usual” 5 senses but also difficulties in interoception and proprioception. These have to do with regulating your emotions and knowing where your body is in relations to the rest of the world.
You may struggle with perception of light, taste, touch/feel, smells, sounds, knowing and expressing your emotions, and being coordinated/clumsy, having trouble while in motion or watching others in motion, listening and understanding, fears related to going too fast, fear of falling, fear of being touched, sudden noises, being overwhelmed by a smell, hating certain foods due to their taste or texture, trouble wearing clothing because of seams, texture of fabrics, sticky labels, etc. The range of sensory struggles is so big I can not include enough examples. But if you think about how you use your senses and what your most difficult struggles are, you may find that many relate to unusual sensory processing.

You might have a personal history of job loss, unemployment, being bullied, abused, “set up”, scammed, used or victimized. You may have a personal history that includes experience with substance abuse, involvement with law enforcement/ justice system, multiple diagnoses of genetic and or neurological disorders, autoimmune disorders, depression, anxiety, or other mental and/ or physical illness, homelessness, poverty, and may have recieved therapy or treatment which was not successful or resulted in non typical ways of responding to treatments for named diagnoses.
These things are documented to be significantly higher in the autistic population.

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One of the difficult things about diagnosis of autism is that it does not have just one way of showing itself, because it is due to differences in neurology, each person will be different, and each of us will have different life experiences, all of which help to hide our struggles and make them difficult to define. The things listed here are necessarily general descriptions and it is up to us to sort out which details of our own lives apply to the descriptions of the way we struggle. Although autism is physically uneven development of our neurology, diagnosis depends on general behavioral guidelines and autism’s effects on our lives are mostly behavioral.

I continue to address older adults who think they may be autistic and to encourage them to consider diagnosis, search out information, to ask for help.
You are not alone.
Knowing my diagnosis has made all the difference to me even at the end stages of my long and struggling life. Finally I can make sense of it all. What a relief!





What happened to all the autistic children?

They grew up to be adults!


Awareness is rising about autism and most people have heard of autism. Autism is primarily thought of as a children’s issue in the eye of the general public. What happens when these kids grow up? What happened to all the children who grew up before autism was commonly diagnosed in kids? They are now autistic adults!
If the CDC is right, there are well over 4 million autistic adults in the United States alone, and most of us have never suspected we are autistic.

How do we find autistic adults today?

Autistic people are more likely to be suicidal.

Autistic people are more likely to be victims of crime.


Autistic people have a higher rate of depression and anxiety.

Autistic people account for about 10 percent of admissions for treatment in rehab centers for alcohol and drugs ( compared to 1 percent of the general population admitted) This is truly stunning when you understand that autism is believed to affect 2.2 percent of the general population.

Autism may account for up to 10 percent or more of the homeless population.

Autism may be involved in those admitted to jails and prisons although very little or no research has been done specifically on autism. Intellectual disability in general has been studied as a factor in prison populations and shown to be present in higher than normal levels among the general population.

Autistic people tend to have poorer health and to die younger. Life expectancy in some studies is as low as 38 years. Other studies say around 58.

From these statements one can see how knowledge of autism would be particularly useful to certain groups. Doctors and health care workers of all types, law enforcement professionals, social workers, can you name others?

Diagnosis of autism as an adult can change lives. Self understanding is one of the keys to finding a new life amid common social struggles. Autistic people seem to have more than our share from a statistical reporting level at the very least. I can not tell you the huge difference my understanding of my own late diagnosis has made in my mundane and every day life. I can only imagine how useful such self knowledge can be to those struggling with such difficult issues in their lives, and how useful it would be to know and understand about how autism may have been involved in so many lives of pain and hardship.
I am reading of mandatory screening for autism in new hospital admissions for suicidal behaviors. I am reading of mandatory screening in clinical situations for care of those struggling with addictions.
I am grateful that professionals in some places are using today’s understanding of autism to help recognize and diagnose autistic adults. So much more needs to be done. Please help spread the word.

Autism Awareness April

April has been designated Autism awareness month once again.

The word is getting out. Autism awareness and acceptance news is spreading.
This is a challenge to all of us to go one step more, some of us will make posts, give talks, write our blogs, participate in other awareness and acceptance activities.
I hope we can add awareness of autism in adults to the things we discuss this year. (2020)

Extrapolated from the most recently completed USA Census, There are 1.6 million children in the USA (2 percent of the total population of those under age 18) who likely are autistic.
Awareness is rising and help is becoming available for children. Never quickly enough but we are definitely making progress.

Children do grow up. Here is a statistic that might surprise you.
Did you know there are likely 4.2 million autistic adults over age 18???
(2 percent of the adult USA population age 18 and older). Did you know the majority of them will be completely unaware of their own autism?
Please share these statistics. Those of us who are affected by autism know the difference a diagnosis makes in our lives.
Thanks for sharing, and for promoting understanding of autism in all ages.
Learn more here:

https:// oldladywithautism.blog/author/debrabrisch3436/

feel free to copy and paste! Share Share Share thank you.