Autism Anger

Shhhhhhh don’t talk about that!!!!!

Autism has a few “sore spots” that seem to be avoided as topics for discussion in the forums I participate in. When somebody does open up, there is a flood of responses, seemingly relief in finding that individuals are not alone in their struggles. I am talking about emotional regulation struggles this time.
Autism and anger, autism and emotional breakdowns due to anxiety, fears, frustration, and inability to cope displayed as meltdowns, shutdowns, violence, tantrums, and outbursts.
We all understand this happens frequently to many of us. But we are ashamed or afraid to talk about it.

Autism is all about our neurology. Many of the ways we experience the world are not the same for us as “neurotypical” or average, “normal” or non-autistic people. Struggles with emotional regulation are definitely not limited to autistic people, we see examples everywhere of people behaving with one or another form of problems with emotional regulation.

Emotions and responses to those emotions are things we generally learn about when we are very small (people in general).
We are taught to recognize our emotions and how to deal with them in socially acceptable ways, usually before we leave home for school days.
Learning to recognize emotions can be helped by explanations given through instruction person to person, videos, books, and role playing, role modeling and other ways.
Learning to recognize emotions and learning ways to express those emotions in healthy and socially acceptable ways takes practice. The good news is that for the most part, these are skills that can benefit from a coach or teacher, a therapist or a counselor.

Sorting and learning to recognize one’s emotions and how to deal with them in healthy ways is part of the sensory system ( remember I said emotions had a neurological basis?) called interoception.

Interoception used to be considered part of the proprioceptive group of neurology but more recently has been removed to its own special category.

Interoception has to do with what you feel physically inside you. It is the sense which tells you what you are feeling when your body gives you physical clues to your needs and wants. That empty feeling in your middle is telling you that you need to eat. The pressure you feel in your lower regions means you need to use the bathroom. The tenseness of your muscles in your stomach and legs can mean that you are afraid and ready to run. The tenseness of your muscles in your neck, your clenched jaw, your tight fists may mean you are getting ready to fight.

Autism often interferes with our ability to recognize the first physical signs of our emotions… so we end up surprised at our own emotional outbursts and our extreme reactions to emotions we did not recognize we were feeling until they reached crisis proportions. The body experiences emotions in a physical way and we can learn to recognize the signs.

Many of us have not been aware of or have not learned to notice the physical signs of emotion. Elevated heartbeat? Heavy breathing? Weak pulse, feeling faint, tight muscles in any part or parts of the body? Feeling sick to one’s stomach, clenched fists, gritting teeth or tight muscles in lips, jaws? Smiling, grimacing, frowning, head lowered or thrown back? What we are feeling physically and doing with our bodies is a huge clue to how we are feeling emotionally. Many autistic people might not recognize body language in others, and many might not recognize our own body’s signs as well. We can learn!

In the forum discussions I have participated in and observed, many autistic adults have remembered that as children they decided emotions were not useful and made deliberate choices to disregard them or to hide them. This seems generally to have been “early on” in the nursery or as a very small child. We can learn to recognize and make use of our emotions, but it does not come naturally to may of us. It is one more thing we might need help with to sort it out. Especially this might be true in older people who are set in their ways and less likely to realize or recognize alternatives.

It is never too late to learn about interoception and how to recognize our building needs and emotions before we reach the bursting point.

Occupational therapists might be able to help, and there are many anger management classes, biofeedback specialists and therapists who specialize in behavioral difficulties. There is much printed and online regarding how to recognize emotions early inside us and how to use that “early warning system” when we recognize it in order to work with our emotions in healthy ways instead of finding ourselves in a huge and surprising/ distressing/ destructive/embarrassing/ blow up situation.

If you struggle with overwhelming emotions of any sort, I want to encourage you that this can be changed, and new ways can be learned to recognize our emotions, to direct and control them into healthier behavior in distressing situations. We can learn to recognize and use our interoception skills as an ‘early warning system’ to detect and divert our physical reactions to emotional situations and make better choices in how to express ourselves or to deal with those emotions before we are overwhelmed and helpless in still another emotional blowout.

If this is an area of distress for you, please be encouraged, it is something that can be helped.
We can learn new ways, sometimes we need to reach out to others who can help us sort it all out.
Don’t be embarrassed or ashamed to take action. Those folks are there because they want to help and they want us to live better lives. There is no shame in asking to learn new skills. And the benefits are beyond measure in terms of the quality of your life and your relationships to others as you move forward.

What do you hear?

Sensory input and autism HEARING

I thought it might be useful to discuss sensory struggles in a little more depth.

I want to stress that sensory struggles for each individual with autism will be different.

It is probably understandable that I have no idea how my own experiences compare with those of ‘normal’ or NT “Neurotypical” individuals or others with autism.
I can only report my own experiences, explain them to the best of my own understanding, and let you decide for yourself if your struggles are the same or different.

I woke up this morning feeling a bit slow and did not immediately get out of bed. Instead I let myself wake slowly and soon became aware of the sounds surrounding me there in the dark.

I could hear my partner breathing deeply and hear the gurgle and rumble of his tummy , the sound of his body against the sheets as he moved and readjusted his position under the covers.
We are having a small storm here.
I could hear the rush of the wind outside in gusts that caused sounds through the branches of close by trees and the hedge near our home. I heard the sound of multiple twigs and small branches hitting the roof, the window, and the side of the house (each sound is different but sometimes they are also simultaneous). Each sound burst when the branches hit the house is sudden and slightly surprising, random and not rhythmical.
I could hear the roar of the lake a block and a half away. The sound of those rushing high waves pounding the limestone and sand is very distinctive.
I heard the water in the radiators rushing and gurgling, I could hear the clicking of the switch on the boiler thermostat turn on and off and could hear the pump initiate itself to push the water through, it hums.
I could hear the low drone of the dehumidifier in the basement.
I could hear the ticking of the clock on the dresser.
I heard our refrigerator running and then shutting off.
I heard the traffic on the highway intermittently when the wind was not gusting.
I heard the sound of the car belonging to the guy who delivers our newspaper every morning. I heard the newspaper hit the porch.
I heard the pie tin placed as a squirrel baffle on the neighbors bird feeder flexing and making tinny noises in the wind.
I heard the dog walking restlessly from room to room and the faint squish of her paw pads, the faint click of her toenails on our laminate floors, and her sighs.

I could hear faint very high ringing in my own ears, ( tinnitis, something fairly new to me and quite annoying) my breathing and for a short while the thudding of my pulse in my ears.

After a few moments I got up to start my day. It was almost 4AM and most people would say the house and even the city was dead quiet at that time.

I am completely unable to edit what I hear at any point in my day.
When I hyperfocus on a book I am reading I am not conscious of any outside noises and people must touch me to get my attention even if they are standing in front of me speaking my name or yelling across the room. I do not do that deliberately, it is something that just happens when I read.

Now think about the sounds I will hear during waking hours and when I go to any new place.

Think about when I was a small child at school and trying to sort out important sounds from those which had no meaning or significance to the learning and schoolroom.
I was surrounded by other small children, each of them snuffling, squirming, scratching, giggling, whispering, toe tapping, finger thumping, hand clapping, playing with pencils, paper, erasers, crayons, scissors, and the sound of the teacher’s voice, the sound of 30 pairs of little feet on the floor, the sound of chalk on the blackboard, turning pages, school bells, the intercom announcements, sounds of chairs being pulled or pushed into place, walking rustling , calling, talking, whispering others as they all passed through the hallways to the buses with motors running just outside, the sounds of traffic, passing airplanes, mowing or snow plowing, and I could list so much more. How is that little autistic kid in the class NOT going to get into trouble for “not paying attention”… and those are just the sounds.

I have learned to sort significant sounds from non significant ones as I have gotten older, but what seems to have been fairly easy for most people has taken me a lifetime, and new environments all call for adjustments and new learning in the new situations.
How difficult is it for an autistic child without the advantages of experience or insight? How difficult is it for an autistic adult in workplace environments?

How difficult is it for an elderly autistic person newly placed in a nursing care or hospital environment?

More soon on other sensory processing issues.

What happens when we have struggles not just with hearing but also with other sensory input?

( hint, most of us have multiple sensory struggles)